Increased access to paediatric palliative care services for children and teenagers in the rural communities of Luri County – Jubek state, South Sudan.

a. Immediate results 1. Increased access of Paediatric palliative care services for 300 children and teenagers diagnosed with cancer and/or HIV/AIDS. This will also result into reduction in deaths among the target population. Children with cancer or infected with HIV/AIDS will receive appropriate healthcare earlier to extend their lives and reduce the need for pursuing time‐consuming and inappropriate care on the part of their families. 2. Increased retention in schools for school going children and teenagers and families will benefit through having their school age care givers being able to attend school. 3. It increased the standard of care and thus decrease the time spent nursing children. As a result time will be spared to engage in economic activities, particularly but not exclusively for women. This is because increasingly, women are getting involved in economic activities. In addition the resources spent on medication could be reallocated to further improve household well‐being. b. Longer term results This project will promote and lead to quality of life for children and teenagers with HIV, cancer and other non-communicable diseases with increased awareness, access to paediatric Palliative care. People in communities through training, awareness and engagements with duty bearers, will gain improved ability and confidence to demand for palliative care and hold duty bearers to account, leading to recognition of palliative care as a right and improve quality of life for patients with zero tolerance to any form of stigmatization. As a result of this project these are the things we hope to be part of bringing about with your support: 1. South Sudan increasing its position on the Quality of Death index, leading to improved standards of care for the terminally ill children across the continent. 2. A narrowing of the gaps that exist so that quality of death is less linked to wealth. 3. Growing understanding across the continent that good palliative care brings enormous social and economic benefits and represents a wise investment of scarce healthcare resources.